This article is from WeChat public account:< Span class="text-remarks">ugly story (ID:chougushi), dictation: Chen Yan, finishing: Jiang Yupu, author: Niu Niu, former Title: “Let’s extend love: the more sick, the more likely you are to get healthier”, title map from: original map

01 Boy said: Auntie, I was wrong
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I started to take medicine in 1996 and have been digestive medicine at the Second Hospital of Zhejiang. Now I am the deputy director of the Department of Gastroenterology.

In the fall of 2013, a 16-year-old boy came to see me. The boy wore a long blue sleeve with oily stains on his chest. He looked dirty and kept pulling his face.

There is his father, thirty years old, his mouth has been broken, always blaming the boy, this child knows to play games at home, ask him to goDon’t want to wash a bowl…

The boy’s father is a native of Guizhou and is now working in Jinhua. His son dropped out of school very early and followed him to Jinhua.

A week ago, the boy called a stomachache and went to a local hospital for a diagnosis. He was diagnosed with Crohn’s disease (a type of inflammatory bowel disease)< /span>. The doctor gave the boy an emergency operation and opened a stoma on his stomach. The stoma is to pull one end of the intestine out of the body surface and let the excrement be discharged from the mouth.

Crohn’s disease is a rare disease. After the stoma is done, the local doctor does not know how to treat it. I recommend the boy’s father to come to me.

His father said: “Doctor Chen, the child got the disease, we don’t know what to do, I only have 2,000 yuan.”

This is awkward for me. The boy’s diagnosis is clear, but to assess the condition, at the very least, you need to have a small intestine CT, which costs more than a thousand dollars. And this disease requires lifelong treatment, which is far from enough.

I said, “You have to do the small intestine CT first, and then come back to me after the results come out.”

After they went back, I worried, how can I help this boy. Some doctors advised me, just look at the doctor, and don’t care too much about other things.

Many patients chatted and became friends

I know a lot of patients with inflammatory bowel disease, everyone is sick. One of the patients, who opened the company in Shaoxing, has better economic conditions. He has said many times that if I have a patient like him who needs money, I can tell him that he is willing to pay for it.

I called him and asked if he could help the boy.


He asked me how much it cost.

I am embarrassed to have more, but I am afraid that treatment is not enough. I said, take 5,000 yuan first. He was very refreshed and directly sent me 5000 yuan. Of course, it is not allowed to do so now. Doctors cannot privately collect patient money.

I gave this 5,000 yuan to a more senior nurse in the hospital and let her manage it. The boy’s medical expenses and inspection fees are all seen from here.

With the doctor who is studying

After two weeks, the boy and his father came again. I told them the good news, saying that a good person has donated 5,000 pieces, you can use it first.

The father and son are very happy. After seeing the disease, they are happy to go back. I am also very fulfilled and feel that it has contributed to a good thing.

A few more weeks later, the boy came alone, this time dressed very clean and in a good mood. Just the next day was our patient association for inflammatory bowel disease. I invited him to let him know more friends.

We often open a meeting of patients, and there are forty or fifty patients to attend each time. is a few enthusiastic patients Zhang Luo. This disease is quite lonely, everyone is sitting together and communicating with each other. Our doctors explain the precautions for medication. Patients share their treatment experiences and encourage other patients.

I gave the boy a small card to the boy with the location of the patient association and the phone number of the organizer. The location of this patient association was chosen by the West Lake and the environment was very good.

The boy said that he would return to Jinhua at night, and it would be too much trouble to come over tomorrow morning. I said that you are in Hangzhou at night, looking for a place to stay for one night, the accommodation fee can also be out of 5000, so as not to run back and forth, but also a waste of money.

Medical for patients

The next day, the patient started, I stood at the door for a long time, he still did not come.

After another month, when I was in Beijing, I received a call from a nurse who was in charge of my money. She hurriedly said, Director Chen, something went wrong. The Jinhua child, sitting in the hospital with a unkempt face, his father threw him at us, regardless of him.

I think this is what it is. I said good things to his father. He only treated him, and for the medical expenses of 5,000 yuan, we could not control him to eat and drink Lazarus. The hospital is not a shelter.

I quickly said to the nurse, you and the child made it clear that we only want to see him, it is impossible to manage his life, you let him go back to find a family.

After the child went back, I felt that it was very difficult to accept this matter. How can such a good thing be done like this?

After a few months, I have no news of this child, and he has never come to the hospital to find me. The volunteers of the patient association contacted him and said that he had already returned to his hometown in Guizhou. There was definitely no one to see him.

A few months later, I received the news of this boy on QQ. He sent me a sentence: Auntie, I am wrong.

I don’t know what to say, I didn’t reply to him, and this thing will be gone. It’s still quite awkward to think about it now.

02 Teens are high-risk groups

Inflammatory bowel disease is a lifelong disease with clinical manifestations of diarrhea, abdominal pain, bloody stools… adolescents with high incidence. The children who have this disease, and their parents, have a particularly high psychological pressure.

In 2017, we started a youth summer camp, 30 to 40 children, counted parents, a total of 70Multiple. These children have a characteristic, suffering from inflammatory bowel disease (referred to as IBD, including ulcerative colitis and Crohn’s disease).

We invited a professional psychology teacher to teach. The teacher asked everyone to close their eyes and imagine themselves as a tree, then slowly open their eyes and draw the trees in their minds on paper.

“Love” is everyone’s encouragement

There is an 8-year-old boy who has three knives on his stomach and spent the rest of the year in the hospital. He drew a big tree with a saw under the tree and saw it all the time. The tree cried and the fruit fell.

It’s really distressing to see such a painting

There is a boy who is just 18 years old. He only painted a trunk, the tree was bare, except for an old man, nothing. He felt that he was such a tree and had no hope.

There is also a 21-year-old boy who has been sick for two years. His mother drew an apple tree, and there was no apple on the tree. They all fell to the ground and scattered all over the place. She said that the children of other people are all talented and the fruit grows on the tree. My son is like a fruit falling on the ground, it is useless.

Children are fruits, but they fall from the tree

Seeing this, my heart is as uncomfortable as being shackled. These children will not be useless. In fact, 80% of patients can control the disease through drugs and live a normal life.

In 2016, we established the “Love in Prolonged Inflammatory Bowel Disease Foundation”, hoping to help more patients with inflammatory bowel disease, improve medical and quality of life, so that they no longer fear and feel warm.

With the kids

03 I want to be a doctor like Dad

Selecting a doctor is influenced by my father.

I am a Changshan native of Cangzhou City, with a younger brother and a younger sister. Dad is an infectious doctor and works at the Changshan County Schistosomiasis Control Center.

Our three sisters

Dad is very busy at work and often goes to the hospital to be on duty. When he is on duty, he will take us to the hospital and let us play.

I was a child

The hospital was built on a hillside mountain with two wards, and the back is the infectious disease isolation area. It is a mysterious place. I have never been to it. However, the mountain is a good place for us to scatter wild.

Take your sister to the lonely old man

When spring, there are a lot of wild strawberries on the mountain, I will pick a lot and put them in the kettle. I have a camera-shaped kettle with a small mouth and I have to put it up every time.

I like to stay in the mountains, listen to the birds in the woods, call the insects, feel the wind blowing through the woods, or take a road that I have never walked. The unrestrained feeling in the mountains is full of me.Attractive.

Play games with kids

When I was seven or eight years old, I took two apples, and with my brother and neighbor’s partners, a total of five people, to climb the highest mountain in our country.

Climb to the middle of the mountain, the younger brother and the little friend can’t move. I took out the apple and let them take a bite and encouraged them to climb to the top. As a result, they are not willing to go any more, I am a little annoyed, how can they halfway.

and Dad on the Hill

Every morning, Dad will take me and my brother, and my sister will go to the morning. Dad runs in the front, I am the big sister, ranked second. My sister is two years younger, behind me. My younger brother is four years old and runs at the end.

My father is a very interesting person. On the TV, “Volleyball Women”, he hopes that we can grow up, just hang a pole on the door frame, let us jump and touch.

Daddy and our sisters

My father also painted a small blackboard at home, calling me and my younger siblings, neighbors’ friends. He posted a question on the blackboard, let us answer, who is right, reward a pencil, or an eraser.

Daddy comes back every business trip, the gift is only a book, he encourages us to read books, often hides some books, locks them in the cabinet, and even hides them in the coffin.

Where dad hides the book, I can find it. The most impressive thing is Maupassant’s Necklace.

In those days, there were old people in the family, and the coffins would be prepared in advance. Our family is on two floors, living downstairs, building upstairs, and the coffin is placed on the second floor. I never think that the coffin is a terrible thing.

Dad’s Free Clinic

My dad is a doctor who treats schistosomiasis, and patients who have this disease will vomit blood. Often in the middle of the night, someone came to our house to knock on the door, saying that there are patients to be rescued. Dad simply went out and went out, and he will come back when it is dawn.